Data Sources

Data Set

Purpose

International Cannabis Policy Study (ICPS)

Conducted in Canada and the US since 2018 and expanded to Australia and New Zealand in 2021. ICPS examines the impact of cannabis policies at the national and provincial/state levels. The overall objective of the ICPS project is to understand the impact of cannabis policies, including the overall impact of legalization, as well as specific regulatory measures, such as product standards, retail policies, cannabis marketing, and public education. The ICPS surveys provide a comprehensive assessment of cannabis use, includes detailed patterns of consumption, purchasing, adverse outcomes, as well as attitudes and beliefs towards cannabis. We use ICPS data to examine trends in cannabis use over time including type of products purchased and reasons for using cannabis.

Data Source: Cannabis Project - (cannabisproject.ca)icon for opening in another tab

National Survey on Drug Use and Health (NSDUH)

NSDUH collects information on approximately 70,000 persons living in the US sampled from the non-institutionalized national population. Data collected include information on lifetime and past-year drug use, substance use disorders per DSM-5 criteria, symptoms indicative of serious mental illness, and selected chronic health conditions. Estimates are available nationally and by state. We use the annual NSDUH data to estimate the incidence (first use) and prevalence (ongoing + first use) of substance use for cannabis and cannabis use disorder in Illinois and in contiguous Midwest states (e.g., Michigan, Wisconsin, Indiana, Missouri, and Iowa) to compare trends over time and by age group, and special populations (e.g., racial/ethnic minorities; sexual identity minorities; pregnant women; and persons with a serious mental illness).

Data Source: National Survey on Drug Use - (www.samhsa.gov)icon for opening in another tab

Treatment Episode Data Set (TEDS) - A (Admissions)

TEDS is administered by the Substance Abuse and Mental Health Services Administration (SAMHSA) and collects data from substance use treatment programs across the US. The information on treatment admissions includes demographics such as age and gender and substance use characteristics such as substances used, age at first use, frequency of use, and number of prior admissions. We use TEDS data to estimate the number of admissions to a substance use treatment program in Illinois for cannabis use disorder and compare the characteristics of these admissions with persons admitted for a different primary substance.

Data Source: Treatment Episode Data Set (TEDS) - (www.samhsa.gov)icon for opening in another tab

Centers for Disease Control (CDC) Wide Ranging Online Data for Epidemiological Research (WONDER)

WONDER provides information on deaths attributable to single or multiple underlying conditions including cannabis use for the US. We use WONDER to track Illinois' cannabis-related fatalities when cannabis poisoning is indicated via ICD-10 code as the underlying or one of multiple causes of death.

Data Source: CDC Wonder - (wonder.cdc.gov)icon for opening in another tab

National Highway Traffic Safety Administration (NHTSA) Fatality Analysis Reporting System (FARS)

FARS provides information on traffic fatalities including the results of drug testing (if done) on the driver of the vehicle in the fatal crash. Data provided include the drug testing results. We use this information to track the number of Illinois traffic fatalities where the driver tested positive for cannabis as well as other drugs.

Data Source: Fatality Analysis Reporting System (FARS) - (www.nhtsa.gov)icon for opening in another tab

Illinois National Emergency Medicine Services Information System (NEMSIS)

Illinois NEMISIS data are provided by the Illinois Department of Public Health Division of EMS and Highway Safety Prehospital Data Program. These data are collected from emergency medical services teams called out to provide care to persons in need of immediate services. The information obtained include the reasons for the EMS call, which we use to track the number of persons receiving EMS owing to cannabis poisoning as the primary reason for the call. We are also able to track whether a cannabis poisoning call required transport to a hospital emergency department.

Data Source: Prehospital Data Program - (dph.illinois.gov)icon for opening in another tab

Illinois Poison Control Center Data

The Illinois Poison Control Center provides information and resources to the public and healthcare providers via a 24-hour hotline. Information on the reason for the call, the age of the person affected by the poisoning, and detail on the substance or substances involved are captured for each inquiry handled by the poison control center. We use these data to track annual cannabis poisonings for the state, with a focus on pediatric poisonings (i.e., ages 1 - 12).

Data Source: Preventing Poisoning Harm - (www.illinoispoisoncenter.org)icon for opening in another tab

Transformed Medicaid Statistical Information System (T-MSIS) Analytic Files (TAF)

Medicaid and Medicare data are obtained from the Center for Medicare and Medicaid Services (CMS). The TAF files are state-provided Medicaid claims data transformed to be more "research friendly". We use the Medicaid data to assess cannabis use disorder prevalence and treatment received for the Illinois Medicaid population (~3,000,000 adults and children) and to specifically assess cannabis use among pregnant or perinatal women on Medicaid. Medicare data will be used to assess opioid and benzodiazepine prescription rates among Illinois seniors following expansion of the Illinois Medical Cannabis Patient Program (MCPP) and the Opioid Alternative Pilot Program (OAPP).

Data Source: T-MSIS Analytic Files - (www.medicaid.gov)icon for opening in another tab

Medical Cannabis Patient Program (MCPP) and the Opioids Alternative Pilot Program (OAPP)

These two programs provide Illinois residents (including veterans) with a medical need for cannabis (e.g., chronic pain, HIV disease) access to a larger amount of cannabis than is allowable for purchase by the general public. Program participants are also able to grow up to 5 marijuana plants for personal consumption. We use these data to track enrollment in each program over time as well as the medical conditions for which cannabis is being prescribed.

Data Source: Medical Cannabis Patient Registry Program - (dph.illinois.gov)icon for opening in another tab

Illinois Department of Corrections (IDOC) Prison Admissions Data Sets

Provides detailed information on persons admitted to Illinois prisons in the most recent calendar and state fiscal years, including the holding offense charge. We use these data to tally how many persons were convicted and imprisoned for Illinois Cannabis Control Act violations.

Data Source: Prison Admission Data Sets - (idoc.illinois.gov)icon for opening in another tab

Uniform Crime Report (UCR) Arrest Data

Arrest data are compiled and reported since 1997 by the Illinois State Police. We have used this information to track Cannabis Control Act Arrests throughout the state by county. The recent and national conversion from the UCR to the National Incident Based Reporting System (NIBRS) for crime reporting might necessitate a switch to NIBRS for arrest data.

Data Source: Crime in Illinois Annual Uniform Crime Report - (isp.illinois.gov)icon for opening in another tab

Illinois Cannabis Regulation Oversight Officer (CROO)

CROO provides information on the cannabis market. dispensary licensing, and cannabis industry demographics, especially as these pertain to diversity concerns. Various annual reports from state agencies as required by the Cannabis Regulation and Tax Act are aggregated and posted by CROO on their web site.

Data Source: CROO Research and Data - (cannabis.illinois.gov)icon for opening in another tab

Illinois Department of Public Health Hospitalizations and Emergency Department Data

The Illinois Department of Public Health provides Illinois emergency department and hospitalization data. These data are collected from hospitals within the state of Illinois. We are able to track cannabis-related hospital and emergency department discharges, including cannabis use disorder.

Data Source: Illinois ED and Hospitalization Data - (dph.illinois.gov)icon for opening in another tab